Sally A. Norton, PhD, RN, FNAP, FPCN, FAAN

  • Associate Professor
  • Independence Chair Nursing and Palliative Care
Sally A. Norton

Contact Information

255 Crittenden Blvd. Box SON Rochester, NY 14642
Work: (585) 275-9814
Fax: (585) 273-1268
Email:

Education

Postdoctoral Research Fellowship, 2001. Oregon Health & Science University, Portland, OR, US

Ph.D., 1999. University of Wisconsin-Madison, Madison, WI, US

MS, 1994. University of Wisconsin-Madison, Madison, WI, US

BS, 1983. University of Iowa, Iowa City, IA, US

Experience

Faculty Appointments: 2010 - Current. Associate Professor Family Medicine (secondary appointment). UR School of Medicine and Dentistry. Rochester, NY, US.

Faculty Appointments: 2008 - Current. Associate Professor. University of Rochester Elaine C. Hubbard Center for Nursing Research on Aging (Palliative care, communication, ethics, end-of-life decision making). Rochester, NY.

Faculty Appointments: 2008 - Current. Associate Professor (Secondary). University of Rochester School of Medicine and Dentistry (Medical Humanities and Family Medicine). Rochester, NY.

Faculty Appointments: 2003 - 2008. Assistant Professor, Secondary Appointment. University of Rochester School of Medicine and Dentistry (Medical Humanities). Rochester, NY, US.

Faculty Appointments: 2001 - 2008. Assistant Professor. Elaine C. Hubbard Center for Nursing Research on Aging, University of Rochester School of Nursing (Aging). Rochester, NY, US.

Professional Experience: 2003 - Current. Co-Director. Center for Ethics, Humanities, and Palliative Care, University of Rochester Medical Center (Research and Performance Improvement). Rochester, NY, US.

Licensure

End-of-Life Nursing Educations Consortium (ELNEC) Certficate of Training

Research

Prognosis Communication in Advanced Cancer Care. Role: Co-I. 7/2013 - 6/2017. American Cancer Society.

Impact of a Novel Cancer Communication Intervention on Caregiver Bereavement. Role: Co-I. 3/2013 - 3/2017. NIH/NCI.

Improving Palliative and End-of-Life Care in Nursing Homes. Role: Co-I. 3/2013 - 3/2016. PCORI.

Preparing the Nursing Workforce for the Current and Future Needs of Older Adults in Healthcare Systems. Role: PI. 1/2012 - 1/2014. New York State Department of Health.

End-of-Life Decision Making in ICUs: Roles and Relationships of Key Players. Role: Site PI. 4/2010 - 3/2013. NIH/NINR.

Role: Co-I, End-of-Life Quality of Care in Nursing Homes. 10/2008 - 9/2012. NIH/NINR .

Prognostic Communication in Palliative Care. 7/2010 - 6/2011. Greenwall Foundation.

Role: PI, Palliative Care in the Acute Care Setting. 7/2005 - 3/2010. National Institute of Health/National Institute of Nursing Research.

Role Co-I, Understanding End-of-Life Practice Patterns in NYS Nursing Homes. 10/2006 - 10/2007. Upstate Palliative Care Research Consortium, Foundation for Healthy Living.

Role: Consultant, Family Surrogate Decision-Making in Advanced Cancer. 9/2005 - 8/2007. National Institute of Nursing Research.

Transforming ICUs to Retain Staff and Improve Unit Outcome. 7/2004 - 6/2007. Department of Health and Human Services.

Role: Co-I, Cost-Benefit Analysis of Inpatient Palliative Care Consultation. 5/2006 - 4/2007. Partial support from Excellus and the Fraser-Parker Foundation.

Palliative Care Research. 7/2003 - 6/2005. Fraser-Parker Foundation.

ICU Culture and Problematic Treatment Limitation Cases. 8/2001 - 5/2004. National Institute of Nursing Research.

Assessing the Needs of VA Patients with Advanced Cancer. 10/1999 - 10/2002. Department of Veterans Affairs.

Proxy Decision-Making Near the End of Life. 10/2000 - 9/2001. American Nurses Foundation.

End-of-Life Research and Ethics. 6/1999 - 6/2001. Oregon Health Sciences University, School of Nursing.

Proxy Decision-Making Near the End of Life. 6/2000 - 11/2000. Beta Psi Chapter of Sigma Theta Tau.

Nurses Perceptions and Use of Advance Directives. 4/1997 - 4/1999. National Institute of Health, National Institute for Nursing Research.

Building Health Systems for People with Chronic Illness. 5/1995 - 4/1996.

Publications

Lowey S.E., Norton S.A., Quinn, J.R., Quill T.E.. (2014). A Place to Get Worse: Perspectives on Avoiding Hospitalization From Patients With End-Stage Cardiopulmonary Disease. Journal of Hospice & Palliative Nursing, 16 (6), 338 - 345.

Norton,S.A., Waldrop, D., & Gramling, R.. (2014). Interprofessional Teams, Palliative Care, and Ethics. T.E. Quill and F.G Miller (Eds.) Palliative Care and Ethics: Common Ground and Cutting Edges., 66-87.

Alexander, S.C., Ladwig, S., Norton, S.A., Gramling, D., Davis, J.K., Metzger, M., DeLuca, J., Gramling R. . (2014). Emotional distress and compassionate responses in palliative are decision-making consultations: A direct observational study. Jouranal of Palliative Medicine. DOI:10.1089/jpm.2013.0551.e-Pub http://online.liebertpub.com/doi/abs/10.1089/jpm.2013.0551.

Metzger, M., Norton, S.A., Quinn, J.A.& Gramling, R.. (2013). Patient and family members' perceptions of palliative care in heart failure. Heart & Lung: The Journal of Acute and Critical CareDoi:10.1016/jhrtling.2012.11.002.http://www.sciencedirect.com/science/article/pii/S0147956312003986, 42, 112-119.

Lowey, S., Norton, S.A., Quinn, J.R. and Quill T.E.. (2013). Living with Advanced Cardiac or COPD. Research in Nursing and Health Doi:10.1002/nur.21546.[Epub ahear of print] http://www.ncbi.nlm.nih.gov/pubmed/23754626.

Norton, SA., Metzger, M., Deluca, J., Quill, T., Alexander, S., Gramling, R.. (2013). Palliative Care Communication: Linking Patient Prognoses, Values and Goals of Care. Research in Nursing and Health, 36 (6), 582-590. DOI: 10.1002/nur. 21563.

Gramling R., Norton, S.A., Ladwig, S., Winters, P., Metzger, M., Quill, T., Alexander, S.. (2013). Latent Classes of Prognosis conversations in Palliative Care: A Mixed -Method Study. Journal of Palliative Medicine, 16 (6), 653-660.

Metzger, M., Norton, S. A., Quinn, J. R, Gramling, R.. (2013). "That Don't Work for Me"; Parients' and Family Memers' Perspectives on Palliative Care ans Hospice in Late-Stage Heart Failure.". Journal of Hospic & Palliative Nursing, 15 (3), 177-182.

Gramling, R., Norton, S.A., Ladwig, S., Metzger, M., DeLuce, J., Gramling, D., Schartz, D., Epstein, R., Quill, T., Alexander, S.. (2012). Direct Observation of Prognosis Communication in Palliative Care: A Descriptive Study. Journal of Pain and Symptom Management, Online ISSN 0885-3924, 10.1016/j.jpainsymman. 2012.02.004http://www.sciencedirect.com/science/artilce/pii/S0885392412001522.

Quinn, J.R., Schmitt, M.H., Baggs, J.G., Norton, S.A., Dombeck, M.T., & Seller, C.R.. (2012). The problem often is that we do not have a family spokesperson but a spokes group': Family member informal roles in end-of-life decision making in adult intensive care units. American Journal of Critical Care, 21 (1), 43-51.

Baggs, J.G., Schmitt, M., Prendergast, T.J., Norton, S.A., Sellers, C.R., Quinn, J.R., Press, N.. (2012). Who is attending? End-of-life decision making in the intensive care unit. . Journal of Palliative Care Medicine, 15 (1), 56-62.

Mukamel, D.B., Caprio, T., Ahn, R., Zheng, N.T., Norton, S.A., Quill, T.E., Temkin-Greener, H.. (2012). End of life quality of care measures for nursing homes: Place of death and hospice. Journal of Palliative Medicine, 15 (4), 438-446.

DeLuca, J.M. Kearney, M. H., Norton, S.A.,& Arnold, G.L.. (2011). Parents' Experiences of Expanded Newborn Screening Evaluations. Pediatrics, 128, 53-61.

Ladwig, S., Norton, S., Gramling, R., and Metzger, M.. (2011). The Conversation Bank Cohort: A Feasibility Study(Abstract #734). The Journal of Pain and Symptom Management, 41 (1), 292.

Powers, B.A., Norton, S.A., Schmitt, M.H., Quill, T.E. & Metzger, M.. (2011). Meaning and Practice of Palliative Care for Hospitalized Older Adults with Life Limiting Illness. Journal of Aging Research, 8.

Norton, S.A., Powers, B.A., Schmitt, M.H., Metzger, M., Fairbanks, E., Deluca, J.and Quill, T.E,. (2011). Navigating Tensions: Integrating Palliative Care Consultation Services into an Academic Medical Cneter Setting. Journal of Pain and Symptom Management.

Temkin-Greener, H., Zheng, N., Norton, S., Quill, T., Ladwig, S., Veazie, P.. (2009). Measuring End-of-Life Care Processes in Nursing Homes. The Gerontologist (49), 803-815.

Shah M.J., Quill T.E., Norton S.A., Lam Y., Buckley M. and Fridd C.. (2008). "What's bothering you the most: Concerns of palliative care patients.". American Journal of Hospice and Palliative Care Medicine, 25 (2), 88-92.

Wiegand, D., Norton, S. A., and Baggs, J. G.. (2008). Challenges in Conducting End of Life Research in Critical Care. AACN Advanced Critical Care, 10 (2), 170-177.

Baggs, J. G., Norton, S. A., Schmitt, M. H., Dombeck, M. T., Sellers, C. R., & Quinn, J. R. . (2007). Intensive Care Unit Cultures and End-of-Life Decision Making. Journal of Critical Care, 22 (2), 159-168.

Norton, S. A., Hogan, L., Holloway, R., Temkin Greener, H., Buckley, M., & Quill, T. E. . (2007). Proactive Palliative Care in the Medical Intensive Care Unit: Reducing Length of Stay for Selected High Risk Patients. Critical Care Medicine, 35 (6), 1530-1535.

Quill, T., Norton, S., Shah, M., Lam, Y., Fridd, C. & Buckley, M. (2006). What is Most Important for you to Achieve? An Anlysis of Patient Responses When Receiving Palliative Care Consultation. Journal of Palliative Medicine, 9 (2), 382-388.

Bowers, B.J., Esmond, S.E., Norton, S.A., Holloway, E. (2006). The Consumer/Provider Relationship as Care Quality Mediator. Consumer Voice and Choice in Long Term Care, 153-166.

Murphy, N., Canales, M., Norton, S. A., & DeFilippis, J.. (2005). Striving for Congruence: The Interconnection Between Values, Practice and Political Action. Policy, Politics and Nursing Practice, 6 (1), 20-29.

Baggs, J.G., Dombeck, M., Quinn, J.R., Norton, S.A., Schmitt, M., Sellers, C.R.. (2004). Limitations of Treatment Decision Making in the ICU: An Ethnographic Study (Symposium Abstracts). 2004 Congress Proceedings: National Congress on the State of the Science in Nursing Research, 80-85.

Norton, S.A., Baggs, J.G., Schmitt, M., Sellers, C.R., Quinn, J.R., Dombeck, M.T. (2004). ICU Family Meetings for Adults Near the End of Life: Unpacking a Common Intervention. Journal of Palliative Medicine, 7 (160).

Norton, S.A. & Quill, T.E.. (2004). Complex Questions Embedded in Tracheotomy Decisions. Head & Neck, 26 (1), 75-76.

Baggs, J.G., Norton, S.A., Schmitt, M.H., & Sellers, C.R.. (2004). The Dying Patient in the ICU: Role of the Interdisciplinary Team. Critical Care Clinics, 20 (3), 525-540.

Norton, S.A., Tilden, V.P., Tolle, S.W., Nelson, C.A., & Eggman, S.T.. (2003). Life Support Withdrawal: Communication and Conflict. American Journal of Critical Care, 12, 548-555.

Hart, K.D., Norton, S.A.. (2003). Legal and Ethical Issues in Disaster Response. In T. G. Veenema (Ed.), Disaster Nursing and Emergency Preparedness for Chemical, Biological and Radiological Terrorism and Other Hazards, 82-103.

Norton, S.A., Bowers, B.J.. (2001). Working Toward Consensus: Provider's Strategies to Shift Patients from Curative to Palliative Treatment Choices. Research in Nursing & Health, 24, 258-269.

Norton, S.A.. (2000). Research on End of Life Care: Provider Comfort and Experience: Two Conditions for End of Life Planning. Communicating Nursing Research, 33 (152).

Norton, S.A., Talerico, K.A.. (2000). Facilitating End-of-Life Decision Making: Strategies for Communicating and Assessing. Journal of Gerontological Nursing, 26 (9), 6-13.

Riesch, S.K., Von Sadovsky, V., Norton, S.A., Pridham, K.. (2000). Moral Reasoning Among Graduate Students in Nursing. Nursing Outlook, 48 (2), 73-80.

Canales, M.K., Bowers, B., Norton, S.A.. (2000). Becoming Part of a Community: Teaching Strategies of Latina Nursing Faculty. Nursing and Health Care Perspectives, 21, 228-233.

Baker, C.A., Bowers, B., Ryther-Clark, B.J., Norton, S.A., Canales, M.K.. (1999). Self and Identity Through an Interactionist Lens: Constructions and Consequences. International Images of Health: Perspectives, Power and Practice, 66-77.

Baker, C., Norton, S.A., Young, T., Ward, S.. (1998). An Exploration of Methodological Pluralism in Nursing Research. Research in Nursing and Health, 21, 545-557.

Bowers, B., Esmond, S., Holloway, E., Norton, S.A. (1996). Quality Care: The Perspectives of Frail Elderly. Wisconsin Bureau of Long Term Support, Division of Community Services, Department of Health and Family Services.

Presentations

Patient and loved one's emotional expressions in palliative care decision-making consultation: A direct observation study.
American Academy on Communication in Healthcare International Conference

Emotional Storm Tracking: Toward the Development of a Method for Measuring Paralinguistic Expressions of Emotions.
American Academy on Communication in Healthcare International Conference

Patient and Family Members' Perceptions of the Role of Palliative Care in Late-Stage Heart Failure Care.
State of the Science: Council for the Advancement of Nursing Science,

The problem often is that we do not have a family spokesperson but a spokesgroup. Family member informal roles in end of life decision making in adult intensive care units.
The Science of Compassion: Future Directions in End-of-Life and Palliative Care Research,

Patient and Family Members' Perceptions of the Role of Palliative Care in Late-Stage Heart Failure Care.
The Science of Compassion: Future Directions in End-of-Life and Palliative Care Research,

Frequency and Characteristics of Prognosis Communication in Palliative Care Inpatient Consultations.
The Science of Compassion: Future Directions in End-of-Life and Palliative Care Research,

The Conversation Bank Cohort: A Feasibility Study.
American Academy of Hospice and Palliative Medicine and Hospice and Palliative Nurses Association Annual Meeting,

Perceptions of EOL Symptom Control in Nursing Homes.
American Academy of Hospice and Palliative Care Medicine and Hospice and Palliative Care Nurses Association Annual Meeting,

Is Palliative Care at the End of Life Cost Saving?.
Academy Health Meeting,

Measuring End-of-Life Care Processes in Nursing Homes.
Academy Health Meeting,

I want to die in my dream home: Home Terminal Extubations.
American Academy of Hospice and Palliative Care Medicine/Hospice and Palliative Care Nurses Association Annual Meeting,

What bothers you the most? Initial responses from patients receiving palliative care.
American Academy of Hospice and Palliative Care Medicine/Hospice and Palliative Care Nurses Association Annual Meeting,

Proactive Palliative Care Consultation in the Medical ICU: A Model for Nurse Managers.
University of Rochester

They're Not Ready Yet: Time and Timing in End of Life Decision Making.
Annual Meeting, American Association of Hospice and Palliative Care Medicine and Hospice and Palliative Care Nurses Association

Proactive Palliative Care in the Medical Intensive Care Unit.
Annual Meeting, American Association of Hospice and Palliative Car

Proactive Palliative Care Consultation in the Medical ICU.
University of Rochester Medical Center Palliative Care Rounds, University of Rochester

ICU Cultural Environments and End-of-Life Decision Making.
Annual Meeting, Gerontological Society of America

What Bothers You Most? Responses From Patients Receiving Palliative Care Consultation.
Annual Meeting, American Geriatrics Society

Limitation of Treatment Decision Making in the ICU: An Ethnographic Study.
Annual Meeting, National Congress for the State of the Science

Integrating Performance Improvement and Research into a Palliative Care Clinical Consultation Service: Challenges and Opportunities.
Management and Leadership Conference, National Association of Hospice and Palliative Care Organization

Palliative Care in the ICU: The IHI Project, with Robert Holloway, M.D. and Expert Clinical Panel.
University of Rochester Medical Center Biopsychosocial Rounds, University of Rochester

Palliative Care Consultations: 2 Years and Counting with Timothy Quill, M.D. and Jeffrey Allen, M.D.
Biopsychosocial Rounds, University of Rochester Medical Center

ICU Culture and Family Meetings for Older Adults Near the End of Life.
Annual Meeting, Gerontological Society of America

Working With People Near the End of Life.
United Methodist Church

Nursing Homes, Ethics, and Life Sustaining Treatment Limitation.
University of Rochester Interdisciplinary Clinical Ethics Rounds, University of Rochester

Family Meetings: Culture, Structure and Function in Three ICU Settings.
Annual Conference, Eastern Nursing Research Society

Palliative Care in Acute Care Settings: New Horizons.
University of Rochester School of Nursing Research Forum, University of Rochester

Values, Policy and Political Action.
12th Annual Conference, International Critical and Feminist Perspectives in Nursing

The Symbolic Representation of Nursing Homes in Decisions to Limit Life-Sustaining Treatment Near the End of Life.
55th Annual Scientific Meeting, Gerontological Society of America

Shared Decision-Making Near the End of Life: Family Members' Perspectives.
14th Annual Scientific Sessions, Eastern Nursing Research Society

Facilitating Decision-Making Near the End of Life: A Systematic Review of End of Life Decision-Making in Long Term Care.
3rd Annual Conference, Evidence-Based Practice

Physicians Orders for Life-Sustaining Treatment.
Presentation with Margaret M. Carley, RN, JD, Porthaven Care Center

Provider Comfort and Experience: Two Conditions of End-of-Life Care Planning.
Annual Meeting, American Public Health Association

The Role of Clinical Ethics Consult Services.
Presentation, Oregon Health Sciences University

Building on a Legacy of Excellence in Nursing Research.
33rd Annual Communicating Nursing Research Conference, WIN Assembly

Negotiating End-of-Life Decisions: A Grounded Theory Study.
Annual Meeting, Midwest Nursing Research Society

Ethics and End-of-Life Issues for Legal and Ethical Issues in Healthcare.
Trial Conference, Legacy Meridian Park Hospital

Reconciling Decisions Near the End of Life: A Grounded Theory Study.
Annual Meeting, Midwest Nursing Research Society

DNR and Advance Directives: Legal and Ethical Issues.
Ethics Symposium, Eldercare

Negotiating Decisions Near the End of Life.
Pain and Palliative Care Conference, University of Wisconsin Hospitals and Clinics

Trauma Ethics.
Trauma Course, Emergency Nurses Association

Patient Perceptions of Intravenous Patient Controlled Analgesics.
Research Day, Beta Eta Chapter of Sigma Theta Tau

Reconciling Choices and Goals Near the End of Life.
Annual Meeting, Midwest Nursing Research Society

Negotiating Decisions Near the End of Life.
Annual Meeting, Wisconsin Nurses Association

Ethical and Professional Practice Issues and Trends.
Nursing Informatics Partnership Conference, Midwest Alliance in Nursing

Perceptions and Use of Advance Directives Near the End of Life.
Annual Research Day, Beta Eta Chapter of Sigma Theta Tau

Nursing Ethics at the Bedside.
Edgewood College

Searching for an Explanation of Patient Satisfaction with Pain Management.
21st Annual Scientific Meeting, American Pain Society

Nurses Perceptions and Use of Advance Directives.
Research Colloquium, University of Wisconsin School of Nursing

Ethical Decision Making for Nurses.
Outreach and Continuing Education in Nursing Audiotape Series, University of Wisconsin

Exploring Dependency: Ethical and Political Consequences for Chronically Ill Persons.
School of Nursing Research Colloquium, University of Wisconsin

Issues in Knowledge Development in Nursing.
School of Nursing Research Colloquium, University of Wisconsin

End-of-Life Decision Making and Dependency: A Grounded Theory Study.
International Images of Health Conference, University of Ballarat

Multi-System Organ Failure: A Case Study.
University of Wisconsin, School of Nursing

Caring for Patients with Liver Disease; A Case Study.
University of Wisconsin, School of Nursing

Multi-System Organ Failure: A Case Study.
University of Wisconsin, School of Nursing

Caring for Patients with Liver Disease; A Case Study.
University of Wisconsin, School of Nursing

An Ethic of Care.
The Challenge of Ethical Decision Making Conference, University of Wisconsin Hospital and Clinics

Psycho-Social Implications for the Critically Ill Patient and Family.
University of Wisconsin Hospital and Clinics

Advanced Directives and Ethics in the Critical Care Arena.
Southwest Wisconsin Chapter of the American Association of Critical Care Nurses

Precepting Students and Staff.
Introductory Preceptor Workshop, University of Wisconsin Hospital and Clinics

Awards

The Palliative Care Nurse of the Year.
March of Dimes, 2013

The Jeremy A. Klainer Endowed Dean's Award in Nursing.
University of Rochaester, School of Nursing, 2012

Fellow.
American Academy of Nursing, 2012

Professional Advancement Award.
University of Rochester, School of Nursing, 2011

Fellow in Palliative Care Nursing.
Hospice and Palliative Care Nurses Association , 2009

Outstanding Faculty Colleague.
University of Rochester School of Nursing, 2007

Distinguished Practitioner.
National Academies of Practice, 2006

The Promising New Investigator Award.
University of Rochester School of Nursing, 2002

John A. Hartford Geriatric Nursing Research Award.
Eastern Nursing Research Society, 2002

John A. Hartford Geriatric Nursing Research Scholar.
Summer Research Institute at New York University, 2002

The Ada Sue Hinshaw Nurse Scholar Award.
Friends of the National Institute of Nursing Research, 2000

Vilas Professional Development Award.
University of Wisconsin, 1999

Qualitative Section Dissertation Proposal Award of.
Midwest Nursing Research Society, 1998

Charles Eckburg Dissertation Scholarship Recipient.
, 1997

Annual Research Award.
Sigma Theta Tau Beta Eta Chapter, 1997

Nursing Excellence Scholarship.
American Association of Critical Care Nurses, 1992

Memberships

New York State Nurses Association

American Nurses Association

Eastern Nursing Research Society

Council for the Advancement of Nursing Science

Sigma Theta Tau International, Member

Hospice and Palliative Care Nurses Association, Chair

American Academy of Hospice and Palliative Care Medicine